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[ by | Nov 17, 2011 3:28 pm | 39 Comments ]
Pat’s Place: The Purgatory of Waiting

A while back I reported how my compromised immune system, reacting to years of chemotherapy, had allowed melanoma (skin cancer) to develop on my left ear. The melanoma was surgically removed on Monday.

But this week’s column isn’t about that.  The surgery went well — although my surgeon did need to remove a larger part of my ear than he originally anticipated.

No, this week’s column is about waiting.

Let me set the scene for you.  I’m lying in pre-op, meeting with an anesthesiologist about my upcoming procedure. 

But I’m…

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[ by | Nov 15, 2011 9:43 am | 27 Comments ]
Birds In Spring: As Time Goes By

Since I got my myeloma diagnosis five and a half years ago, I haven’t been given to bouts of depression.

With a myeloma diagnosis, you really don’t have time to feel sorry for yourself.

I’ve tried to take in stride all the things “they” have done to me – two autologus stem cell transplants, a myriad of chemotherapy side effects, an open lung biopsy, and endless needle sticks, just to name a few.

Then there’s the prodding, probing, and testing by various doctors and specialist of all kinds.  There were…

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[ by | Nov 10, 2011 2:34 pm | 34 Comments ]
Pat’s Place: Dealing With Peripheral Neuropathy

I, like probably many multiple myeloma survivors, experience peripheral neuropathy.

Peripheral neuropathy is a condition that is a result of nerve damage. It is commonly found in diabetes patients and older people, as well as those of us with multiple myeloma.

Symptoms include numbness in the hands and feet, loss of balance, trouble writing, opening jars, trouble with buttons or zippers, and/or pain in various parts of the body.

Sometimes people who suffer from peripheral neuropathy experience something best described as “stingers”–shooting nerve pain which can race up and down…

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[ by | Nov 8, 2011 9:55 am | 7 Comments ]
Arnie’s Rebounding World: Genomics And Personalized Medicine – Promise Versus Reality

Ever since I was diagnosed with multiple myeloma five and a half years ago, hardly a day goes by when I don’t read some breathtaking headline about the promise of “personalized medicine” in the treatment of cancer.

News article after news article declares that breakthroughs in unlocking cancer’s genetic code will lead to new, highly individualized, highly effective treatments.

Sounds great.  How could it not make your heart race a little faster knowing a cure is right around the corner?

Yet, when I go to talk to my doctor, none…

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[ by | Nov 3, 2011 1:18 pm | 38 Comments ]
Pat’s Place: Thank You, Team Myeloma!

As I prepared to write my weekly column, I must admit my mind drew a blank!  Why?  Sheer exhaustion, I think.

As most of you know, I underwent an autologous stem cell transplant this summer. Two weeks ago, I shared how the transplant had actually made my multiple myeloma worse.

Earlier this week, I learned that surgery will be required to remove an area of melanoma on my left ear.  That’s right — melanoma — as in skin cancer.

I need a vacation!

Instead, I’m heading out to attend and…

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