[ by Pat Killingsworth | Aug 19, 2010 12:04 pm | 10 Comments ]
Pat’s Place: Suggestions From Multiple Myeloma Patients To Help Us All Stay Positive

Last week, I promised to share a few tips that some of my multiple myeloma friends use to stay positive.

Staying positive does not cure cancer—and it probably doesn’t help extend a patient’s life. Surprised? Don’t be. There are a number of studies which prove this to be the case, including a large, 1,000 patient study, published in 2007 in the American Cancer Society’s journal Cancer.

A reader once commented on one of my blogs, “Pushing the idea that a positive attitude can help defeat cancer may leave some…

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[ by Melissa Cobleigh | Aug 18, 2010 2:19 pm | No Comment ]
MGUS And Smoldering Multiple Myeloma: Experts Identify Risk Factors For Disease Progression And Establish Monitoring Guidelines – Part 2: Smoldering Myeloma

The International Myeloma Working Group, a group of top myeloma doctors, recently published a report identifying risk factors for disease progression in patients with the multiple myeloma precursor diseases, monoclonal gammopathy of undetermined significance and smoldering myeloma. In addition, the myeloma experts established guidelines for the monitoring and management of these two conditions.  This article, Part 2 in a series, covers the results for smoldering myeloma. Part 1 covers the results for myeloma monoclonal gammopathy of undetermined significance.

The International Myeloma Working Group identified the following risk factors for…

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[ by Christine McLaren | Aug 18, 2010 8:57 am | No Comment ]

Eighth Canadian Province Approves Revlimid Funding – Revlimid (lenalidomide) in combination with dexamethasone (Decadron) is now funded and accessible in Manitoba, Canada for multiple myeloma patients who have been previously treated. Only two provinces, Nova Scotia and Prince Edward Island, deny access to myeloma patients who do not have private insurance. Myeloma Canada, an organization dedicated to supporting myeloma patients, will continue campaigning for universal coverage of Revlimid. For more information, please see the Myeloma Canada press release.

Astex And MMRC Begin Phase 2 Study Of AT7519 For Myeloma – Astex Therapeutics has launched a Phase 2 clinical trial, funded by the Multiple Myeloma Research Consortium (MMRC), of AT7519 for relapsed or refractory multiple myeloma patients. AT7519 is a cyclin-dependent kinase inhibitor that prevents the growth and spread of myeloma cells by interfering with cell division. Previous trials have shown it has significant anti-tumor effect. AT7519 will be tested alone and in combination with Velcade (bortezomib). For more information, see the MMRC press release.

IMF Will Hold Myeloma Patient And Family Seminar – The International Myeloma Foundation (IMF) will hold an educational program for multiple myeloma patients and their families on August 27 and August 28 in Universal City, CA. Doctors in the myeloma field will answer questions and cover topics such as managing side effects, current standard treatments, and on-going clinical trials. The cost for the seminar is $60 per person. For more information or to register, please see the IMF website.

For a more detailed listing of myeloma-related events, please check the Myeloma Beacon Events Calendar.

[ by Lou Ganim | Aug 17, 2010 10:22 am | 3 Comments ]
Birds In Spring: Your Quality Of Life – Don’t Forget To Live

Back in 2006, when I was initially diagnosed with myeloma, I learned of the interest among researchers in investigating maintenance therapies, particularly a Revlimid (lenalidomide)/dexamethasone (Decadron) combination.

This struck me at the time as an encouraging and exciting development, particularly for anyone who had paid attention to how a similar line of research and the introduction of protease inhibitors and combination therapies have changed the lives of many persons living with HIV/AIDS over the past 15 years.

I thought it would be great if someone said to me, “Hey, take…

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[ by Melissa Cobleigh | Aug 16, 2010 5:59 pm | No Comment ]
MGUS And Smoldering Multiple Myeloma: Experts Identify Risk Factors For Disease Progression And Establish Monitoring Guidelines – Part 1: MGUS

The International Myeloma Working Group, a group of top myeloma doctors, recently published a report identifying risk factors for disease progression in patients with the multiple myeloma precursor diseases, monoclonal gammopathy of undetermined significance and smoldering myeloma. In addition, the myeloma experts established guidelines for the monitoring and management of these two conditions.  This article, Part 1 in a series, covers the results for monoclonal gammopathy of undetermined significance. Part 2 will cover the results for smoldering myeloma.

The International Myeloma Working Group identified the following risk factors for…

Read the full story »