Opinion


The following articles are reader contributions. The opinions expressed in these articles are solely those of the authors and do not necessarily reflect the opinions of The Myeloma Beacon or its staff.


[ by | Mar 27, 2015 4:45 pm | 5 Comments ]
Myeloma, Party Of Two: The Token Wife

It was appointment day, and my husband Daniel and I rode in thought­ful silence as we neared the hospital. Neither one of us felt like talk­ing, nor did we make banal chit-chat, a small com­fort from knowing one another so well. He drove more ag­gres­sive­ly than usual, dodg­ing in out of traffic like Mario Andretti in his final lap. I grasped the door handle, but I said noth­ing, which for me was not usual.

My thoughts ran to his ap­point­ment, and maybe his did too. “Did the hemo­globin levels hold, or will …

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[ by | Mar 25, 2015 9:33 am | 14 Comments ]
Myeloma Mom: Smoldering Isn’t As Sexy As It Sounds

When I was diagnosed with multiple myeloma in 2005, my specialist told me that my disease fell into the category of smoldering myeloma.

This meant that, while I had abnormal myeloma cells in my bone marrow and abnormal protein in my blood, the myeloma wasn’t yet harming me. I didn’t have any other symptoms, such as anemia, bone damage, or kid­ney involvement. I’d have my blood tested every few months, but I didn’t need any treatment.

My first reaction to the smoldering diagnosis was one of intense relief. After a …

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[ by | Mar 19, 2015 1:30 pm | 41 Comments ]
Mohr’s Myeloma Musings: A New Chapter - Maintenance Therapy

There are several analogies that are used to describe our ex­peri­ences liv­ing with multiple myeloma. The most common appear to be a battle, a jour­ney, or chap­ters in a book.

The analogy that currently resonates the most with me is the one of chap­ters in a book.

The titles of each chapter of my multiple myeloma book are pretty obvious: Diag­nosis, Radi­a­tion Treat­ment, Watch and Wait, Induction Ther­apy, and Autol­o­gous Stem Cell Trans­plant. The next chapter of my book will be entitled ‘Maintenance Therapy.’

In this column, I would like …

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[ by | Mar 17, 2015 3:12 pm | 11 Comments ]
Letters From Cancerland: Write Your Own Obituary

One of my many niche skills is that I know how to design, plan, and draft the legal foundation – motions, rules, procedures, and manuals – of what we in Ohio call "specialized dockets."

A specialized docket is also called a treatment court. There are different kinds of specialized dockets, each of which focuses on one class of offenders who all share a non-criminal trait that causes them to break the law.

Overall, these special courts are intended to offer "a therapeutically ori­ented judicial approach to providing court supervision and appropriate treatment …

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[ by | Mar 13, 2015 11:39 am | 17 Comments ]
Myeloma in Paradise: When To Get A Stem Cell Transplant?

I would like to address a topic that almost all of us with multiple myeloma have to deal with at one point or another – when to get a stem cell trans­plant.

Many of you reading this have been through this procedure already. It is often prescribed soon after diagnosis for patients with advanced myeloma. Most of these folks didn’t have much choice in the matter; it was something that needed to be done urgently to give them the best chance of survival.

Others – and I am in this …

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