Comments on: Melphalan-Prednisone Survival Rates Higher Than Thalidomide-Dexamethasone In Elderly http://www.myelomabeacon.com/news/2009/04/24/melphalan-prednisone-survival-rates-higher-than-thalidomide-dexamethasone-in-elderly/ Multiple myeloma news, resources, and online forums for patients, caregivers, and others interested in multiple myeloma. Sat, 11 Feb 2012 15:20:52 +0000 hourly 1 By: Beacon Staff http://www.myelomabeacon.com/news/2009/04/24/melphalan-prednisone-survival-rates-higher-than-thalidomide-dexamethasone-in-elderly/comment-page-1/#comment-10489 Beacon Staff Mon, 14 Jun 2010 15:21:03 +0000 http://www.myelomabeacon.com/?p=7923#comment-10489 Hello Iyauai, We are very sorry to hear about the problems you are having with your Velcade treatment. It would be difficult for us to help you directly because we are based in the USA, and you and your physicians are in Norway. However, there are at least two Norwegian organizations that might be able to help you. First, there is a group of multiple myeloma patients who have received stem cell transplants. Even if you have not had a stem cell transplant, this group may be able to put you in contact with other myeloma patients who may be able to advise you and help you get assistance for your problems. The organization is called "Margen", and information about them is available on the web at <a href="http://www.margen.no" rel="nofollow">www.margen.no</a> . Second, you also should consider contacting the Norwegian Cancer Society. The Society has nurses and social workers who almost certainly will be able to help you. The Cancer Society's website is at <a href="http://www.kreftforeningen.no/" rel="nofollow">www.kreftforeningen.no</a> . The Society's full list of contact information is at this <a href="http://www.kreftforeningen.no/om_kreftforeningen/kontaktinformasjon/kontaktinformasjon_1850" rel="nofollow">link</a>. Good luck! Hello Iyauai,

We are very sorry to hear about the problems you are having with your Velcade treatment.

It would be difficult for us to help you directly because we are based in the USA, and you and your physicians are in Norway.

However, there are at least two Norwegian organizations that might be able to help you.

First, there is a group of multiple myeloma patients who have received stem cell transplants. Even if you have not had a stem cell transplant, this group may be able to put you in contact with other myeloma patients who may be able to advise you and help you get assistance for your problems.

The organization is called “Margen”, and information about them is available on the web at http://www.margen.no .

Second, you also should consider contacting the Norwegian Cancer Society. The Society has nurses and social workers who almost certainly will be able to help you. The Cancer Society’s website is at http://www.kreftforeningen.no . The Society’s full list of contact information is at this link.

Good luck!

]]> By: IYAUAI POOPALASINGHAM http://www.myelomabeacon.com/news/2009/04/24/melphalan-prednisone-survival-rates-higher-than-thalidomide-dexamethasone-in-elderly/comment-page-1/#comment-10290 IYAUAI POOPALASINGHAM Wed, 09 Jun 2010 19:55:27 +0000 http://www.myelomabeacon.com/?p=7923#comment-10290 I am suffering multiple myeloma past 8 years. Treatment under Haukeland universitetssjuhehus. This year (January 2010) my doctors gave VELCADE me without any explanation about this medication. After few doses I feel colled terrible painning unable to walk and no sleeping. Still I am suffering. I am using many different type of painkilling tablets. No improvement. I am worried. My body is very pain. Can you help me or contact Bergen Haukaland Hospital? I am suffering multiple myeloma past 8 years. Treatment under Haukeland universitetssjuhehus. This year (January 2010) my doctors gave VELCADE me without any explanation about this medication. After few doses I feel colled terrible painning unable to walk and no sleeping. Still I am suffering. I am using many different type of painkilling tablets. No improvement. I am worried. My body is very pain. Can you help me or contact Bergen Haukaland Hospital?

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