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LongLifeNoodles

LongLifeNoodles

Long Life Noodles is written by a father and corporate attorney in his mid-forties living in Silicon Valley, CA. He was diagnosed with multiple myeloma in December 2008 and is currently in remission. His posts provide information on a wide range of myeloma-related topics from clinical trial results for new treatments to an explanation of the diagnostic criteria for multiple myeloma. This blog offers current myeloma news from the perspective of a man living with the disease and making the…

http://longlifenoodles.com/
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Lorna and Micky Our-loma

Lorna and Micky Our-loma

Micky (or Mike as he is more commonly referred) was diagnosed with multiple myeloma in January 2010 and is currently receiving treatment. The blog is primarily maintained by Lorna, Mike’s partner, who posts on the blog most days about Mike’s condition, his treatments, and how she is coping. The couple lives in the United Kingdom.

http://lornaandmickyour-loma.blogspot.com/
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Margaret’s Corner – Life with Myeloma

Margaret’s Corner – Life with Myeloma

Life with Myeloma is written by Margaret, a 47-year old American woman who is currently living in Florence, Italy. Margaret was initially diagnosed with monoclonal gammopathy of undetermined significance (MGUS) in 1999, which later progressed to multiple myeloma by late 2005. Margaret updates her blog several times a week. In addition to discussing her personal struggle with myeloma, many of her posts focus on her research on new myeloma medications and clinical trials.

http://margaret.healthblogs.org
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Me And Pointdexter

Me And Pointdexter

In ‘Me and Pointdexter’, Deacon John, a Roman Catholic Deacon of the Archdiocese of Louisville, KY, writes about his spiritual journey through life with multiple myeloma. Deacon John writes at least once a month about battling to live a normal life while enduring treatments. In his three years since diagnosis, he has undergone a variety of treatments, including a stem cell transplant using his own stem cells as well as a donor transplant.

http://meandpoindexter.blogspot.com/
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Medical Musings

Medical Musings

Lonnie Nesseler, a myeloma patient and pianist from San Diego, maintains the Medical Musings blog. He was diagnosed with multiple myeloma in 1998 and received his first stem cell transplant in September 2005, which put him into temporary remission. He started his blog at the beginning of 2009 to describe the process of his second transplant that he was supposed to have in February 2009. In detailed posts, Nesseler describes the changes that had to be made to his treatment…

http://nesseler-medical.blogspot.com/
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Multiple Myeloma for Dummies

Multiple Myeloma for Dummies

In August 2008, 29-year-old Phil Brabbs, a former kicker for the University of Michigan, was diagnosed with smoldering multiple myeloma which progressed to symptomatic myeloma over the next year. He started treatment in October 2009. Once a week, he and his wife, Cassie, blog about their thoughts and reactions to the diagnosis and how it intersects with their young family’s day-to-day life. Phil participated in a clinical trial evaluating a four drug combination and has since undergone two stem cell transplants.

http://mmfordummies.blogspot.com/
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Multiple Myeloma Missive

Multiple Myeloma Missive

Stephen Greene, from Boston, Massachusetts, was diagnosed with multiple myeloma in 2002. He uses his blog ‘Multiple Myeloma Missive’ to write about his personal experiences with the disease and other happenings in his life. Stephen began blogging in April 2010 and posts once every few months.

http://getaroundthetrack.blogspot.com/
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Multiple Myeloma My Way

Multiple Myeloma My Way

Mark Kirk was diagnosed with multiple myeloma in September 2005 at the age of 43 after pain from a sports injury became so severe that it required an MRI. He achieved remission after two stem cell transplants in 2006 but relapsed in 2010 and is undergoing treatment again. He writes about the pain he goes through, the medications he is on, his interactions with doctors, and his issues with trying to work. He posts every couple of weeks during his…

http://knotfourhigher.blogspot.com/
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Multiple Myeloma World Tour

Multiple Myeloma World Tour

Multiple Myeloma World Tour has just a handful of entries covering 2005 until the present. The writer, a devoted grandfather, writes mostly about his family and his vacations. A 2007 entry said that he was still in remission four years after tandem autologous stem cell transplants, followed by low-dose maintenance therapy until summer 2006. As of November 2007, he continues to visit his doctor monthly for monitoring.

http://vogtmmlist.blogspot.com/
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My Life With Myeloma

My Life With Myeloma

Sean Tiernan, from the United Kingdom, was diagnosed with multiple myeloma in November 2009. While primarily about his life with myeloma, Sean’s blog also includes posts about fund raising events and recent studies. He often includes photographs with his postings. He updates his blog several times a week and raises money for the Myeloma UK on his site.

http://mylifewithmyeloma.blogspot.com/
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