Multiple Myeloma Blogs
Joe’s Gathering
This blog is about Joe’s myeloma treatment and is typically maintained by his partner, Linda. The blog begins just before Joe received a donor stem cell transplant in November 2010, and it was updated several times a week during the transplant and the first month of Joe’s recovery. Since then, Linda writes a couple of times per month, often about a complication called graft-versus-host disease that Joe developed after his transplant.
Julie’s Myeloma Moments
Julie was diagnosed with multiple myeloma in December 2009 and underwent chemotherapy followed by an autologous stem cell transplant in 2010. She updates her blog several times each month with postings about her personal life and living with myeloma. She also posts photos of her family and friends.
Keep In Touch
Guy Alon was diagnosed with multiple myeloma and maintains this blog to keep his friends and family updated on his progress. The blog begins in November 2007 soon after Guy’s diagnosis. Guy writes about his treatment, participation in clinical trials, and how he feels. He typically updates his blog every one or two months.
Laughing Plasma Cells
On Laughing Plasma Cells, Scott Woodward writes once a month about how he is responding to his multiple myeloma treatments. He also occasionally posts about the latest in myeloma research news. Woodward was diagnosed with multiple myeloma in late 2005. Alongside his writing about his myeloma, Woodward gives brief, lively anecdotes about his recent vacations, adopting a stray cat, and the change of seasons in western New York state, where he lives with his wife. He currently teaches at the…
Let the Healing Begin
Eve, a 61-year old myeloma patient in Michigan, was diagnosed in early 2005. In 2006 her stem cells were harvested in preparation for an autologous stem cell transplant, but due to complications, she did not, and will not, undergo the procedure. The blog, which is updated once or twice a month, integrates short updates of her myeloma condition with personal stories and photographs of her family.
Li Leng’s Blog
Li Leng, a multiple myeloma patient, started her blog in June 2007 to chronicle her thoughts and everyday experiences. Li was also diagnosed in April 2009 with myelodysplastic syndromes (MDS). Currently, Li is undergoing treatment with Vidaza for her MDS. She often writes about her treatment and test results and also uses her blog to share Bible quotes and prayers.
Life’s Journey With Multiple Myeloma
Alpesh is a 40-year old male who has been living with multiple myeloma since October 2008. In Life’s Journey with Multiple Myeloma, Alpesh and his wife, Sima, provide updates on Alpesh’s condition once or twice each month, describing his treatment routine, doctor’s visits, and results of his blood tests and medical scans. The blog focuses on Alpesh’s condition in the context of his life as a husband and father. Many posts describe events in Alpesh’s life apart from his condition,…
Lina’s MM Adventure Diaries
Lina’s MM Adventure Diaries is written by Lina, who was diagnosed with multiple myeloma in October 2009. She underwent stem cell transplantation and chemotherapy in Little Rock, Arkansas and recently started a three-year maintenance therapy regimen of Velcade/dexamethasone at UCSF. While receving treatment, Lina updated her blog twice a week and currently blogs a couple of times per month. Her blog focuses on personal experiences with treatment and the support system that has helped her through her journey.
Lisa Ray’s Blog
Lisa Ray is an actress and model who was diagnosed with multiple myeloma in June 2009 at the age of 37. As a Canadian who has starred in several Bollywood movies, Lisa travels throughout Canada and India to raise awareness about her disease. Lisa’s writing is often poetic. Her blog posts focus on how she is feeling as well as her awareness efforts. Now that Lisa is in remission after a stem cell transplant, she updates her blog once every…
Living with Multiple Myeloma
Pat Killingsworth was diagnosed with multiple myeloma in April 2007. After being in remission for more than two years, Pat recently relapsed and underwent a stem cell transplant. Pat has dedicated his life to helping other cancer patients. He has written a book about his myeloma and visits multiple myeloma support groups around the country. He updates his blog daily with myeloma news, conference briefings, and clinical trial summaries.
Click here to recommend a link.
