Blogs
Nick’s Myeloma Blog
Nick Van Dyk, the 41-year old guitarist for the progressive metal band Redemption, maintains a personal blog to track the progress of his multiple myeloma. Diagnosed in late 2008, Nick updates his blog several times a week with updates on his condition. Most of Nick’s entries recount appointments with his doctor and his experience with two autologous stem cell transplants.
Let the Healing Begin
Eve, a 61-year old myeloma patient in Michigan, was diagnosed in early 2005. In 2006 her stem cells were harvested in preparation for an autologous stem cell transplant, but due to complications, she did not, and will not, undergo the procedure. The blog, which is updated once or twice a month, integrates short updates of her myeloma condition with personal stories and photographs of her family.
Laughing Plasma Cells
On Laughing Plasma Cells, Scott Woodward writes once a month about how he is responding to his multiple myeloma treatments. He also occasionally posts about the latest in myeloma research news. Woodward was diagnosed with multiple myeloma in late 2005. Alongside his writing about his myeloma, Woodward gives brief, lively anecdotes about his recent vacations, adopting a stray cat, and the change of seasons in western New York state, where he lives with his wife. He currently teaches at the…
Happenings with Dom and Nan
In Happenings with Dom and Nan, Nan updates readers on how her husband Dom, 64, is responding to his multiple myeloma treatment. Dom was diagnosed in 2008. Nan writes about the side effects Dom feels and their interactions with health professionals. After doctor’s visits, she also posts Dom’s blood cell counts. The updates are interspersed with stories about their daily lives in the rural Deep South.
Multiple Myeloma for Dummies
In August 2008, 29-year-old Phil Brabbs, a former kicker for the University of Michigan, was diagnosed with smoldering multiple myeloma which progressed to symptomatic myeloma over the next year. He started treatment in October 2009. Once a week, he and his wife, Cassie, blog about their thoughts and reactions to the diagnosis and how it intersects with their young family’s day-to-day life. Phil is participating in a clinical trial evaluating a four drug combination. He plans to undergo a stem cell transplant.
Good Blood, Bad Blood
Good Blood, Bad Blood is written by John Smith, a myeloma patient in Oregon who was diagnosed in late 2007. His blog entries, which are updated once or twice a month, discuss his drug treatments, an autologous stem cell transplant, and his subsequent recuperation.
LongLifeNoodles
Long Life Noodles is written by a father and corporate attorney in his mid-forties living in Silicon Valley, CA. He was diagnosed with multiple myeloma in December 2008 and is currently in remission. His posts provide information on a wide range of myeloma-related topics from clinical trial results for new treatments to an explanation of the diagnostic criteria for multiple myeloma. This blog offers current myeloma news from the perspective of a man living with the disease and making the…
Lorna and Micky Our-loma
Micky (or Mike as he is more commonly referred) was diagnosed with multiple myeloma in January 2010 and is currently receiving treatment. The blog is primarily maintained by Lorna, Mike’s partner, who posts on the blog most days about Mike’s condition, his treatments, and how she is coping. The couple lives in the United Kingdom.
Li Leng’s Blog
Li Leng, a multiple myeloma patient, started her blog in June 2007 to chronicle her thoughts and everyday experiences. Li was also diagnosed in April 2009 with myelodysplastic syndromes (MDS). Currently, Li is undergoing treatment with Vidaza for her MDS. She often writes about her treatment and test results and also uses her blog to share Bible quotes and prayers.
Sid’s Multiple Myeloma Journey
Sid’s Muliple Myeloma Journey chronicles 62-year-old draughtsman Sidney Hider’s stories and thoughts about living with multiple myeloma over the past eight years. In this retrospective blog, compiled from dairies and memories, Hider relates his experiences with dealing with nausea, hair loss, difficult emotions, and more. Hider posts several times a month, giving a good picture of his day-to-day dealings with myeloma. He lives in Waitakere City, New Zealand with his wife, Myra.
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