Comments on: Nick’s Myeloma Blog

By: Hank

Hank — Sat, 15 Oct 2011 02:57:53 +0000

Do anyone have any info regarding shingles vaccine for MM patients? The vaccine “Zostavax” is a live virus.

By: Bernie Ryan

Bernie Ryan — Fri, 14 Jan 2011 02:35:33 +0000

Nick, Enjoyed you blog. I am also a long term myeloma survivor – diagnozed in 1999 at the age of 47. I would not call my current status remission… but still the treatment of this chronic disease allows me to work full time, enjoy a swim at the beach, golf, hike, travel. I am looking at retiring in a year and am working thru questions of life expectancy and what I really need to cover both living expenses and medical care and insurance. I have survived 12 years with MM and given my current health believe I have an additional 10 to 15 years to look forward to. Smoldering, non secreting MM is how they describe my disease. (I stopped generating MM protien markers that we had followed for the past 10 years despite the fact that PET scans show some active disease). Good luck

By: Marie Banham

Marie Banham — Fri, 19 Nov 2010 18:17:26 +0000

Dear Nick, I’m a 65 year-old woman diagnosed January 12, 2002 and cannot thank you enough for your tremendous effort in writing “How I Spent My Summer Vacation.” I’ve been reading constantly on the subject of transplants and your article made the most sense and was written with the most clarity of anything I’ve read. This should be published and made known to the myeloma community who desperately need your insights and clear thinking. I might not be a candidate for anything UAMS or Dr. Bart Barlogie can offer, but after reading about you, I’m going to give it a shot. Certainly don’t have anything to lose. Sincerely and gratefully, Marie Banham (mariebanham@hotmail.com)

By: tami bateman

tami bateman — Fri, 10 Sep 2010 19:28:37 +0000

I just discovered Nick’s blog and love it and him. I was diagnosed in 2006 and while never complete remission-maintain and .1 or.2–take all the drugs, still on dex and now rev. Hate them, but what are the other options. My dr. is not very concerned about any of my concerns, so not a pleasand relationship. I cannot figure out how to share your blogs there is no way to forward link? God bless you Nick, you’ll beat this. I am much older 65, but always felt I was forty until this struck. Awful desease. tami

By: Boris

Boris — Fri, 18 Sep 2009 22:39:21 +0000

Nick has written up a long, but very informative, summary of his battle with myeloma called "How I Spent My Summer Vacation." It has some great insights into what multiple myeloma is, what the different treatment options are, and what actually happens when you start treatment for the disease. Highly recommended.