UK Myeloma Forum
The UK Myeloma Forum offers myeloma patients and families a chance to learn more about the disease through meetings, lectures, and clinical guidelines. The organization also provides a travel scholarship for key myeloma and haematology meetings.
Hello,
First time entry.
Howard
Hi I am so pleased that Velcade has been such a help to Myeloma suffers ..Unfortunately nine years ago when it was on trial my Husband was too poorly to recieve it ..in his eight years of the illness he went on many trials saying if it didnt help him it might help somebody in the future..
I cannot begin to say thank you to Royal Marsden Sutton for their support and help in those eight years ..
The aniversary of his Death is on Monday ..nine years have passed and I still miss him.
I find comfort in reading about how Myeloma is now being treated and the success in prolonging peoples lives..
wish all people who have or had Myeloma a Happy Christmas and may 2012 be a good year for research .
Dorothy
Hi Dorothy..Happy Christmas to you too. We patients who have been helped by Velcade and other drugs and treatments know that the research that went before is how the drugs were developed. I am sorry that your husband did not have the benefits of that as well, but he must have helped in the development of new treatments by taking part in trials. Probably I wouldn’t be still here now if it weren’t for the more recent drugs available now. Take good care of yourself!
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