I have just been sent to an oncologist/hematologist. He told me that because of this spike, fevers and generally being unwell, I need a bone marrow biopsy. Is this necessary? He said we need to rule out multiple myeloma. If I did have this wouldn't other things such as cbc come out abnormal? I am only 36 and the Doctor said I'm too young. My only other symptoms are sore ribs and spine, headaches fingers goung numb off and on. What are your thoughts?
- Name: Multibilly
- Who do you know with myeloma?: Me
- When were you/they diagnosed?: Nov, 2012
- Name: Nancy Shamanna
- Who do you know with myeloma?: Self and others too
- When were you/they diagnosed?: July 2009
The average age of a myeloma patient is 69-70, but unfortunately folks much younger may still be diagnosed. I would also highly recommend that you seek a myeloma center of excellence (if not at one already) for a secondary opinion if the diagnosis of myeloma is even a potential after these initial tests. I feel this is a disease whose management should be at least overseen by an expert in the field.
Please keep us updated on your news and goings on.
H. Lee Moffitt Cancer Center & Research Institute
Any advice provided in these postings is based on a very limited amount of information. There is no substitute for the care of your oncologist/hematologist. Therefore, all suggestions should be discussed with your treating physician. None of the comments presented here are meant to replace the evaluation of a patient by a knowledgeable physician.
Dr. Ken Shain
- Name: Ken Shain, M.D., Ph.D.
Beacon Medical Advisor
Good on your Dr. for thinking for being thorough in his/her testing and uncovering the protein. (using your symptoms not your age) if I had a protien test I could have been diagnosed two years earlier, instead of going dr. to dr. looking for answers.
Good luck, !
- Name: Heather Trimnell
- Who do you know with myeloma?: me
- When were you/they diagnosed?: 4/1/2011
- Age at diagnosis: 36
Thank you for sharing your update. I am sorry you received this diagnosis and wish you all of the very best with your days moving forward.
Would you share any more details as to how your doctors/specialists arrived at the diagnosis of multiple myeloma? What diagnostics did they perform to come to this conclusion. I am presently smoldering and am trying to understand the diagnostics of diagnosis. Many thanks to you if yu are willing to share this info.
And again, all of the very best to you moving forward.