My question is ... Now what? What are the chances of us resuming a normal life. Is this going to go away? What can we expect for the future?
Any responses would be greatly appreciated.
Disease assessment should occur about 3 months after transplant.
Any advice provided in these postings is based on a very limited amount of information. There is no substitute for the care of your oncologist/hematologist. Therefore, all suggestions should be discussed with your treating physician. None of the comments presented here are meant to replace the evaluation of a patient by a knowledgeable physician.
Dr. Jason Valent
- Name: Jason Valent, M.D.
Beacon Medical Advisor
After 6 weeks she was cycling about 100 miles a week and hiking 15 miles a week.
She lives every day to the fullest while she can before the inevitable happens.
Good luck to both of you.
** I prefer not to think of myself as a cancer patient,
but rather as a cancer survivor trainee! **
- Name: John Snippe
- Who do you know with myeloma?: me
- When were you/they diagnosed?: Jan, 2011
- Age at diagnosis: 56
For some it can be a long road. Everybody is different. I was very sick after SCT. Fevers etc. Not a lot of fun. But I am pretty good now ....
She is still struggling to get her strength back and seems to catch a lot of viruses still. Just got out of hospital a month ago from having RSV and pneumonia. However, her cancer numbers are still showing no signs of the multiple myeloma!
Praising God daily for her healing and the doctors for their ability to help her! Taking each day as a miracle and blessing and living it to the fullest!
He did switch from working full time to only 2 days a week. If he had to work full time, he could. He goes to the Y and works out 4-5 times a week and is physically active. We are traveling a lot and doing the things we want to do.
- Who do you know with myeloma?: husband
- When were you/they diagnosed?: 4/9/11
- Age at diagnosis: 54
After the first transplant, he felt pretty good after 6 to 8 weeks, although fatigue and the neuropathy did not fully resolve. The second auto transplant was much harder on his system. All of the effects of the melphalan were intensified during the second transplant. He ran fevers and had several hard-to-beat colds and seemingly chronic diarrhea. This time, it was 10 to 12 weeks before he felt that he was getting over it.
He has just completed his first maintenance regimen (Revlimid and dexamethasone - 21 days on, 7 days off). And so far, so good. He is working one day a week and is back on his bicycle logging about 30 miles per week.
We don't know yet how the cumulative effects of his maintenance chemo is going to affect him, but at this point, he rates himself about 85-90% of where he was before he got sick.
Good luck on your journey! Try to focus on the trees instead of the forest! Remember, everyone's experience is unique.
- Who do you know with myeloma?: Husband
- When were you/they diagnosed?: 1/1/2012
- Age at diagnosis: 56
I was wondering if anyone has seen / experienced big changes in personality during / after treatment. Like moodiness, snappiness, displacement of anger on the caregiver especially. Things like that, along with totally changing as far as religion goes. Going from never going to church to going every possible chance and reading the Bible and other biblical items constantly.
I think that your husband is probably still in a bit of shock over having such a close call with myeloma. Previously, and quite recently, the prognosis for myeloma was quite grim, and he probably knows that too. Thus he is seeking out his spiritual side to help to come to terms with the diagnosis.
At least now the outlook for us patients is improving, and so hopefully after a while he will relax a bit more and be more of his usual self.
Hope that helps! Also, most cancer centres have spiritual advisors, and counsellors and maybe that would be helpful to your family.
- Name: Nancy Shamanna
- Who do you know with myeloma?: Self and others too
- When were you/they diagnosed?: July 2009