I've investigated and all I find seems to indicate that platinum based drugs cause hearing loss. I did have some of those before a transplant back in 2009 but my hearing loss has really only started in the last couple of years.
Can the platinum based drugs be affecting me now or is it the Velcade/thalomid? And can anyone tell me if it may improve if I stop taking the drugs?
Thanks for any knowledge/experience you can share.
- Name: Eric H
- When were you/they diagnosed?: 01 April 2011
- Age at diagnosis: 44
now that I'm in remission I am not having the frequent ear infections and my ear drum has healed, but is now "scarred" according to ENT. So any sign of an infection I'm supposed to go to ER or the DR right away and get on the second tier drugs (amoxicillan is what they normally give but my last infection was resistant and it was quite bad and took multiple rounds of antibiotics to clear).
Your best bet is to see an ENT and have full hearing tests.
Even when your myeloma is behaving there are all this other things to worry about!
- Name: Heather-Dawn Filipiak
- Who do you know with myeloma?: Myself
- When were you/they diagnosed?: July 2012
- Age at diagnosis: 67
I would recommend that you make you primary oncologist aware, consider auditory testing, consider imaging, and from there make a determination if the losses are treatment related or from something else.
Best of luck and keep us informed.
H. Lee Moffitt Cancer Center & Research Institute
Any advice provided in these postings is based on a very limited amount of information. There is no substitute for the care of your oncologist/hematologist. Therefore, all suggestions should be discussed with your treating physician. None of the comments presented here are meant to replace the evaluation of a patient by a knowledgeable physician.
Dr. Ken Shain
- Name: Ken Shain, M.D., Ph.D.
Beacon Medical Advisor