Contact Us
If you have any questions or concerns regarding The Myeloma Beacon, please email us at .
Notifications about myeloma news and events can be sent to .
Independent, up-to-date news and information for multiple myeloma patients and their families.
This is a wonderful resource. Congratulations & thank you.
Can someone with Multiple Myelom eat fruit? What is the treatment for Multiple Myelom
Anna, thank you for your very important questions.
We have not come across any literature that specifically shows myeloma patients should not eat fruit. However, grapefruits and Seville oranges are known to interact with certain drugs, and it may be best for myeloma patients to avoid these fruits (http://tinyurl.com/imf2001 and http://tinyurl.com/cmaj2002).
Additionally, myeloma patients who have recently undergone intensive therapy should avoid the risk of infections. Therefore, food should be washed or cooked thoroughly, including fruits and vegetables (http://tinyurl.com/cancresuk). Please consult your physician, though, before deciding whether to exclude fruits from your diet.
On a related topic, green tea has been shown to interfere with Velcade treatment, so myeloma patients using Velcade should avoid drinking green tea (http://tinyurl.com/grntea09).
We have numerous articles about the treatment of multiple myeloma in our Resources Section (http://www.myelomabeacon.com/resources/). It may be helpful to begin reading our Treatment Overview article. If you would like further information about myeloma therapies, please see our articles about Revlimid (lenalidomide), Velcade (bortezomib), and thalidomide (Thalomid).
Welcome to The Multiple Myeloma Community, I need all of the information possible.
Thank you for being here for all of us.
Regards,
Claudine
As a very involved 15-yr Myeloma survivor, I’m pleasantly surprised when I learn about a new resource such as your Myeloma Beacon. After quickly scanning your site, I think you provide a tremendous amount of current information, for example your up-to-date events listing by location. I’m pleased to add your link to our SF Bay Area MM Support group website. -Jack
Hi
I have been on ivi velcade x 30 mths
I am now using it sub cut and getting rather strong local reaction
Is there a specific sub cut formulation
Thank you for the wonderful website
Dr R L Unterslak
I’d like to subscribe to your paper.dfk
I am a 51 yr old female who was diagnosed with MM in Nov 2010. Although I am doing great now, as I am in complete remission, I have a question: how much of a daily calcium supplement is recommended? I currently take a multi vitamin with 500 mg of calcium in the morning and then at night take another 600mg of calcium with 400IU of D. Is this too much? Thanks!
I have been on ivi velcade x 30 mths
I am now using it sub cut and getting rather strong local reaction
Now there is a generalized rash which can get quite itchy at night is this connected?
Suggestions?
Thanks so much,
Michael Marrella, MD
My rheumatologist noticed an increase in my serum protein levels in December 2010…he sent me to an oncologist and I had further testing…my M-1 spike started at 2.2 and has gone to 2.9…my bone marrow results showed 7% plasma cells (bone marrow has not been repeated)…my kidney function is good, no bone leisions. Doctor is talking about a Revlimid treatment…I’ve read that MGUS has no symptoms but I have a lot of bone and muscle pain and have for a long time. I read the side effect on Revlimid and have most of them now…I don’t want to take on more symptoms but I do believe in preventative treatment. Any advice?
If you have MGUS or even smoldering myeloma, the current standard of care is monitoring without treatment. You would want to make sure you have reached the active stage of the disease before following your doctor’s advice of taking Revlimid or any other drugs. I don’t know what tests you have taken that indicated you have no bone lesions. If you are worried about your bond pain and haven’t had one of the more accurate tests such as the whole-body MRI and PET scan, you might want to ask for one. They would do a better job than a regualr X-ray bone survey. Good luck!
Beacon Staff:
I posted a new topic – Low Haptoglobin Count – on Wednesday. But it seemed to show up only for a very short period of time before disappearing. Can you let me know what happened? Thanks!
Ben
March 2, 2012 rec. Confirmation of Multiple Myeloma diagnoses, I am normally a health 48 yr old man who has never been sick or injured enough to ever be in a hospital for than a few hours on 2 occasions in my entire life. I currently take velcade”lowest dose”, twice a wk & revlimid one time a day every day seven day a week.
8 wks ago I had back surgery and a 3 centimeter legion was found and tested positive for Multiple Myeloma. I currently take two supplements Pine Pollen and Script twice a day, I feel strong Now and I work out 4 to 5 times a wk. Any suggestions ?
Leave a comment
The Myeloma Beacon is brought to you in part by: