Blogs
Beating Myeloma
David Emerson maintains the blog at the Beating Myeloma website, and he posts to the blog about two or three times a month. David is also the founder of the Beating Myeloma website. He lives in Cleveland, and was diagnosed with multiple myeloma in 1994 at the age of 34. David has been “cancer free,” he says, since 1999 after undergoing antineoplaston therapy following several rounds of radiation treatment and chemotherapy. His blog entries…
Because I Said So
Because I Said So’s writer, who calls herself “La Cootina,” shares daily stories and thoughts about her life, including her fight with multiple myeloma. Her comical and inspirational way of writing offers readers a new perspective into life with cancer. She is currently taking part in a clinical trial evaluating the pill form of a chemotherapy drug.
Beth’s Multiple Myeloma Blog
Beth Morgan, a 47-year old in North Carolina, founded Beth’s Multiple Myeloma Blog shortly after her diagnosis in early 2003. Beth updates her blog several times a month with personal stories focusing on her experiences with myeloma, which include treatment through a stem cell transplant.
Chris’ Myeloma Blog
In Chris’ Myeloma Blog, Chris VanHonk writes short and upbeat posts every few days about how he is responding to his multiple myeloma treatment. Some of his posts include pictures of the treatment—catheters, his stem cell transplant machine, and the like—which give an interesting, patient’s-eye view of the treatments. Chris was diagnosed with multiple myeloma in 2006.
Cindy’s Multiple Myeloma Blog
A couple times a month, Cindy writes long, detailed, and thoughtful entries about her reactions to her multiple myeloma diagnosis and her visits with different doctors. She has lived with multiple myeloma since 2005 and began blogging about it in 2007, at the age of 52. Though she had symptomatic multiple myeloma before, her current disease is now considered smoldering. She lives on 17 acres with her four horses, four dogs, and four cats.
Deludia
Bob Kirkpatrick, a Vietnam veteran, started his blog in May 2008, shortly after being diagnosed with multiple myeloma. Bob has been treated with Doxil, Velcade, and Zometa and blogs about the physical and emotional side effects he experiences. He also comments on the Veterans Affairs health care system. Updated several times a week, this blog offers valuable insight into the realities and daily struggles of a man with multiple myeloma.
Good Blood, Bad Blood
Good Blood, Bad Blood is written by John Smith, a myeloma patient in Oregon who was diagnosed in late 2007. His blog entries, which are updated once or twice a month, discuss his drug treatments, an autologous stem cell transplant, and his subsequent recuperation.
Happenings with Dom and Nan
In Happenings with Dom and Nan, Nan updates readers on how her husband Dom, 64, is responding to his multiple myeloma treatment. Dom was diagnosed in 2008. Nan writes about the side effects Dom feels and their interactions with health professionals. After doctor’s visits, she also posts Dom’s blood cell counts. The updates are interspersed with stories about their daily lives in the rural Deep South.
Highway to Hell
Diagnosed with Stage 1 multiple myeloma in April 2009, Canadian Paul M. writes about multiple myeloma news and information and updates readers on his condition after doctor’s visits. Besides the “cancer talk,” he comments on politics and music and entertains readers with humorous links and videos. Paul updates his blog several times a month.
Jan’s Journey
Jan was diagnosed with multiple myeloma in 2007 and has kept her blog since. She writes detailed entries, several times a month, on her experiences with her treatment. There is a sidebar on the right that chronicles, in pictures, the loss and regrowth of her hair following treatment.
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