Pat Killingsworth's Archive

Pat writes a monthly column for The Myeloma Beacon. He was diagnosed with multiple myeloma in April of 2007 at age 51. However, Pat initially experienced what is called a complete response (or temporary remission), achieved by using a combination of extensive radiation and chemotherapy. Although his multiple myeloma has returned, it is still under control—and it hasn't slowed him down! Pat has written a book about his experience called "Living with Multiple Myeloma," and Pat maintains two blogs, Living with Multiple Myeloma and Help with Cancer . Pat's wife, Pattie, is also a cancer survivor. She remains cancer free today. The Killingsworth's have dedicated their lives to helping other cancer patients and survivors learn to cope with their disease.

Pat Killingsworth has written 127 article(s) .

[ by | Nov 11, 2010 10:49 am | 25 Comments ]
Pat's Place: Living The Life Of An Average Multiple Myeloma Survivor

One week ago, I celebrated an important milestone: I have survived 43 months with multiple myeloma.

What was so important about 43 months? That was the median life expectancy at the time I was diagnosed.

It is only human nature to immediately ask the question, “Doctor, how long do I have to live?” after you learn you have cancer.

My Mayo Clinic oncologist, Dr. Steven Zeldenrust, was forthright and honest with me when I asked him that question back in …

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[ by | Nov 4, 2010 2:07 pm | 20 Comments ]
Pat's Place: A Myeloma Patient’s Reflections On Maintenance Therapy

More and more studies are showing that using maintenance therapy after a patient achieves a complete or very good partial response delays progression of multiple myeloma.

In this case, disease progression is the amount of time it takes for your multiple myeloma to return after it responds to treatment, also frequently called relapse. Maintenance therapy can be used following a stem cell transplant or after using novel therapies during the initial phase of treatment.

The jury is still out whether …

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[ by | Oct 28, 2010 12:11 pm | 4 Comments ]
Pat’s Place: Flying The “Friendly Skies” With Multiple Myeloma

Air travel can be challenging, especially with an ongoing health condition. Multiple myeloma is certainly no exception. Busy airports, long security lines, and packed planes can be frustrating or even bad for your health.

Here are a few things multiple myeloma patients can do to in preparation for flying:

1. Don’t forget your address book. It is important to have all of your medical contact info with you when you travel, including your doctors’ phone numbers and insurance information. …

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[ by | Oct 21, 2010 1:03 pm | 2 Comments ]
Pat's Place: Hockey Promotion Gives Hope To Multiple Myeloma Patients And Their Families

On Monday night, I attended a National Hockey League game here in Tampa, Florida. The Tampa Bay Lightning played the Dallas Stars at an event billed as “Hockey Fights Cancer Night.”

Modeled loosely after the National Football League's breast cancer awareness program—you know, the one that has all of the players wearing pink shoes and hats—this promotion wasn't as big a deal.

No pink skates or helmets to be found. There were a few public announcements and banners. Young girls …

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[ by | Oct 14, 2010 2:38 pm | 11 Comments ]
Pat's Place: We Need To Be Respectful Of Our Fellow Myeloma Patients' Therapy Choices

Over the years, I have heard a large number of patients—and especially caregivers—aggressively defend their anti-myeloma therapy and treatment center choices.

At first I was confused by this. I didn't understand why others could become so upset and defensive over different therapy choices.

But the truth is: nearly every multiple myeloma patient and caregiver today has been placed in a horribly unfair and difficult position.

I'm not talking about our cancer—of course that isn’t fair! But I'm talking about …

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