Pat Killingsworth's Archive

Pat writes a monthly column for The Myeloma Beacon. He was diagnosed with multiple myeloma in April of 2007 at age 51. However, Pat initially experienced what is called a complete response (or temporary remission), achieved by using a combination of extensive radiation and chemotherapy. Although his multiple myeloma has returned, it is still under control—and it hasn't slowed him down! Pat has written a book about his experience called "Living with Multiple Myeloma," and Pat maintains two blogs, Living with Multiple Myeloma and Help with Cancer . Pat's wife, Pattie, is also a cancer survivor. She remains cancer free today. The Killingsworth's have dedicated their lives to helping other cancer patients and survivors learn to cope with their disease.

Pat Killingsworth has written 125 article(s) .

[ by | Oct 2, 2014 3:25 pm | 31 Comments ]
Pat’s Place:  It’s All About The Journey

Last month, I wrote about undergoing radiation therapy on both hips. I thought this month I would pass along how I’m doing in other ways.

First, the numbers.  My doublet therapy of Pomalyst (pomalidomide; Imnovid) and dexamethasone (Decadron) has now held my M-spike steady for two full months. The problem is that, even though my M-spike hovers around 0.6 g/dL (6 g/L), I get the distinct, painful feeling that lesions are continuing to develop and get worse.

The radiation …

Tags: , ,
Read the full story »
[ by | Sep 11, 2014 1:37 pm | 21 Comments ]
Pat’s Place: Give Radiation Therapy A Chance

I relapsed six or seven months ago. That fact was made painfully clear when I broke a rib getting into my wife’s car; several new lesions had weakened the ribs on my right side.

I assumed the acute pain was caused by the fracture. While I’m sure the break contributed to my discomfort, it turns out that one of the lesions was pressing on a nerve that runs along the underside of my rib cage. My medical oncologist immediately consulted with my radiation …

Tags: , , ,
Read the full story »
[ by | Aug 7, 2014 4:20 pm | 31 Comments ]
Pat’s Place: Finding Comfort In The Simple Things

Most people avoid doing chores, whether it be washing dishes, mowing the lawn, doing laundry, or walking the dog. But for me, daily tasks are a joy.

I take great pleasure in the simple things. Routine is a welcome respite. I enjoy spending time around the house, chipping away at the “honey do” list – writing my column, or working on my next book with our dog, Finnegan, lying at my feet.

It wasn’t always this way. I dreaded the mundane and repetitive tasks …

Tags: , ,
Read the full story »
[ by | Jul 28, 2014 6:44 pm | 53 Comments ]
Pat’s Place: Refractory To Revlimid & Velcade – What’s Next?

Earlier this month, I admitted something that wasn’t easy for me: I’m refractory to both Revlimid and Velcade.

So what’s the big deal?  There are plenty of other drugs I haven’t tried.

True, my outlook isn’t as dire as it would have been three or four years ago.  I recall attending a pre­sen­ta­tion at the American Society of Hema­tol­ogy’s 2011 annual meeting in San Diego. Pomalyst and Kyprolis weren’t approved yet by the U.S. Food and Drug Administration. But a panel of …

Tags: , ,
Read the full story »
[ by | Jun 19, 2014 12:04 pm | 28 Comments ]
Pat’s Place: Be Careful What You Wish For

“Inconclusive.”  That’s how my myeloma specialist described my current con­di­tion two weeks ago.

While I initially struggled with this description – because there was no clear-cut solution for it – I slowly came to see the upside of my current situation: It allowed me to not hurry to the next treatment, but rather em­brace every day, no matter how uncertain or painful it may be.

My new specialist at the Mayo Clinic, Jacksonville, came highly recom­mended by several of my contacts at the …

Tags: , ,
Read the full story »