Pat Killingsworth's Archive

Pat writes a monthly column for The Myeloma Beacon. He was diagnosed with multiple myeloma in April of 2007 at age 51. However, Pat initially experienced what is called a complete response (or temporary remission), achieved by using a combination of extensive radiation and chemotherapy. Although his multiple myeloma has returned, it is still under control—and it hasn't slowed him down! Pat has written a book about his experience called "Living with Multiple Myeloma," and Pat maintains two blogs, Living with Multiple Myeloma and Help with Cancer . Pat's wife, Pattie, is also a cancer survivor. She remains cancer free today. The Killingsworth's have dedicated their lives to helping other cancer patients and survivors learn to cope with their disease.

Pat Killingsworth has written 133 article(s) .

[ by | Jun 12, 2015 5:28 pm | 42 Comments ]
Pat’s Place: Don’t Forget To Be Joyful!

Boy, do I strike out on this one!

Yes, I thank God everyday for being alive.  And last night I took our dog, Finnegan, out for a midnight walk down to the beach under a glorious full moon.

But truth be told, I get too caught up in all I have to do every day.

There are advantages and disadvantages to working from home. Yes, I can get up and write in the shorts and T-shirts I slept in last …

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[ by | May 14, 2015 3:15 pm | 19 Comments ]
Pat’s Place:  Clinical Trials Need To Include All Of Us

Just when you think you’ve got this myeloma thing figured out, there’s so much to learn all over again.

Look­ing ahead, most of us have an idea about what we’d do when we start running out of FDA-approved drugs to help us: join a clinical trial. And there are literally hundreds of them for multiple myeloma patients.

So no worries, right? Simply pick one from column A, B, or C, and away we go. Hopefully, our doctor can help …

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[ by | Apr 4, 2015 5:06 am | 60 Comments ]
Pat’s Place:  Decision Made - I’m Going To Transplant Again

I’m fond of saying, “I still have a number of myeloma ther­a­py op­tions, but none of them are good.” The last part is a re­flec­tion of in­vesti­ga­tional work I’ve done speaking with a number of myeloma experts I know.

For two months, I’ve promised to share which direction my lovely wife, Pattie, and I have decided to go in terms of my next treat­ment. After six months of pros and cons lists, con­ver­sa­tions with readers, family, friends, and other myeloma sur­vivors, we’ve …

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[ by | Mar 6, 2015 3:22 pm | 21 Comments ]
Pat’s Place:  Multiple Myeloma Awareness Applies To Patients, Too

Last month I promised to share details of my new myeloma treatment plan. As I write this, I’m waiting to meet with a leading myeloma specialist at the University of Iowa for a second opinion.

I spent several days here undergoing extensive testing, including a bone marrow biopsy, PET scan, and MRI that looked at two thirds of my body and took an ex­cruciatingly long 80 minutes; that’s a long time to hold still!

I’m anxious to go over the …

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[ by | Feb 5, 2015 4:54 pm | 31 Comments ]
Pat’s Place:  Don’t Let Denial Cost You Your Life

An oncologist you’ve just met says you have multiple myeloma, an incurable cancer of the bone marrow. He or she reminds you that you aren’t a sta­tis­tic. “With luck,” your oncologist says, “You can live six or seven years — even longer. We should start treatment immediately.”

You and your caregiver frantically hit the Internet, hopefully viewing sites rec­om­mended by your doctor first. Overall survival statistics are all over the map: from three or four years to a decade or more.  Much of the …

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