Pat Killingsworth's Archive

Pat writes a monthly column for The Myeloma Beacon. He was diagnosed with multiple myeloma in April of 2007 at age 51. However, Pat initially experienced what is called a complete response (or temporary remission), achieved by using a combination of extensive radiation and chemotherapy. Although his multiple myeloma has returned, it is still under control—and it hasn't slowed him down! Pat has written a book about his experience called "Living with Multiple Myeloma," and Pat maintains two blogs, Living with Multiple Myeloma and Help with Cancer . Pat's wife, Pattie, is also a cancer survivor. She remains cancer free today. The Killingsworth's have dedicated their lives to helping other cancer patients and survivors learn to cope with their disease.

Pat Killingsworth has written 129 article(s) .

[ by | Feb 5, 2015 4:54 pm | 31 Comments ]
Pat’s Place:  Don’t Let Denial Cost You Your Life

An oncologist you’ve just met says you have multiple myeloma, an incurable cancer of the bone marrow. He or she reminds you that you aren’t a sta­tis­tic. “With luck,” your oncologist says, “You can live six or seven years — even longer. We should start treatment immediately.”

You and your caregiver frantically hit the Internet, hopefully viewing sites rec­om­mended by your doctor first. Overall survival statistics are all over the map: from three or four years to a decade or more.  Much of the …

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[ by | Jan 9, 2015 6:55 pm | 35 Comments ]
Pat’s Place: Go With The Flow

“Stay positive!” “Be hopeful!” “Don’t worry, one of the new drugs will work!”

Friends, family members – even people we meet for the first time on the street – all try to help keep our spirits up. A bit over-the-top, sometimes, but I try and be appreciative and not blame them for their naïveté.

No matter how hard we try, it’s impossible to stay positive and hopeful all of the time. Someone who’s chronically ill is going to have a bad day. Especially since …

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[ by | Dec 4, 2014 1:21 am | 14 Comments ]
Pat’s Place:  Myeloma And The Holidays

It’s the holiday season. Cut through the slick marketing and commer­cial­ism, and it should be a time to give thanks and spend time with friends and family.

For me, living with multiple myeloma makes every day bittersweet. It can be hard to stay positive, especially this time of year. I’ll admit it: thoughts of possibly missing future holidays – and time with those I love – some­times makes it challenging for me to focus on all of the good things.

But that’s the point. There are …

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[ by | Nov 7, 2014 5:13 pm | 31 Comments ]
Pat's Place: Taking Care Of Your Caregiver

My wife, Pattie, is an amazing caregiver.  Smart and compassionate, her own experiences as a cancer survivor prepared her to intuitively understand what I need and when.

Pattie also has had a lot of practice as a caregiver; she’s been watching over me for over seven years.

I was battling symptoms for years before my multiple myeloma was diag­nosed in April of 2007. The good news was that an MRI finally revealed what a half dozen doctors couldn’t figure out. We …

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[ by | Oct 2, 2014 3:25 pm | 31 Comments ]
Pat’s Place:  It’s All About The Journey

Last month, I wrote about undergoing radiation therapy on both hips. I thought this month I would pass along how I’m doing in other ways.

First, the numbers.  My doublet therapy of Pomalyst (pomalidomide; Imnovid) and dexamethasone (Decadron) has now held my M-spike steady for two full months. The problem is that, even though my M-spike hovers around 0.6 g/dL (6 g/L), I get the distinct, painful feeling that lesions are continuing to develop and get worse.

The radiation …

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