The mission of The Myeloma Beacon is to improve the treatment, care, and support available to current and future multiple myeloma patients worldwide.
To accomplish this mission, The Beacon has been online since 2008, providing independent, up-to-date news and other information for the multiple myeloma community.
In the process, The Beacon has become a one-stop source for reviews of current myeloma-related research, patient columns, original physician contributions, and online discussion.
All Beacon articles are written in language accessible to the lay reader. The articles also contain enough detailed information, however, to serve the needs of readers seeking a deeper understanding of the subject matter.
The Myeloma Beacon is supported financially by its sponsors, which provide general, unrestricted backing for the Beacon's efforts to develop objective and balanced content for its readers.
The Editorial Board of The Myeloma Beacon consists of the Beacon’s publisher, Boris Simkovich, and its two associate publishers, Maike Haehle and Julie Shilane. The Board sets the Beacon’s editorial guidelines and standards, and it broadly determines the type and mix of content published by The Beacon.
Boris Simkovich//php the_author_posts_link(); ?>
Boris is the President of Light Knowledge Resources and Publisher of the Myeloma Beacon. Boris co-founded LKR in 2005 when the firm started developing its first website, an Internet search service. Boris has a B.S. in Nuclear Engineering from Penn State and a Ph.D. in Economics from Harvard. In his free time, Boris enjoys watching movies and reading.
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Maike joined Light Knowledge Resources in May 2009 as an associate publisher. She is responsible for the development of the Beacon websites. Before joining LKR, Maike worked in consulting for many years. She holds a linguistics degree and degree in business from two German schools. In her spare time, she enjoys gardening, reading and practicing and teaching yoga.
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Julie joined Light Knowledge Resources in March of 2008 after graduating from Princeton University with her Ph.D. in Chemistry. Her dissertation research involved the development of small molecule chemotherapeutics. She also has a B.S. in Chemistry and Mathematics from Moravian College. At LKR, Julie works on the development of the Beacon websites. With several family members who have battled cancer, she aspires to help patients through her work at The Beacon. Julie's interests include crafts, playing piano, and spending time with her family.
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Emma is a junior at Brown University. She is studying Health and Human Biology and planning on attending medical school after completing her undergraduate education. In her spare time, Emma enjoys running, biking, reading, and spending time with her family and friends. Emma joined The Myeloma Beacon team in August 2013.
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Sruti graduated in May 2013 with a Ph.D. in immunology from Duke University. For her dissertation, Sruti studied signaling pathways through which stimuli from the T cell surface find their way to the nucleus. In her free time, she enjoys reading and doing outdoor activities. Sruti joined the LKR team in September 2011.
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Navneet is a sophomore at the University of California – Los Angeles. He is majoring in Molecular, Cell, and Developmental Biology and minoring in Biomedical Research. Navneet would like to attend medical school after completing his undergraduate education. In his spare time, he enjoys playing basketball, catching up on technology-related news, and watching comedy movies. Navneet joined The Myeloma Beacon team in August 2012.
Karen Crowley is 38 years old and lives in Kansas City, Missouri, with her husband, daughter, and elderly cat. She was diagnosed with smoldering multiple myeloma in 2005, when she was a 30-year-old new mom. When the myeloma quit smoldering in 2007, she began treatment with Revlimid and dexamethasone. She is still on Revlimid, which has been keeping her disease stable. She enjoys running, reading, and writing her blog, The Adventures of Cancer Girl, which takes a humorous look at cancer and life in general.
Deborah Dietzler writes a monthly Myeloma Beacon column called “Big Sis In Burgundy.” Her sister Deana was diagnosed with multiple myeloma in April 2011. A native of Queens, NY, who now resides in Athens, GA, Deborah is currently Executive Director of Alumni Relations at the University of Georgia. She and her husband, Peter Anderson, have a family of three dogs: Vegas, Riga, and Bula.
Lou Ganim writes a monthly column for The Myeloma Beacon. Lou’s career has spanned more than four decades in the newspaper, government, and health care fields. He moved to a small town in New York’s Saratoga County that had only one traffic light more than thirty years ago, only to watch it explode in population around him. Now, he bemoans the traffic and misses the stars he used to see from his front porch that are now blocked by light pollution. Lou was diagnosed with multiple myeloma in May 2006, and his Beacon column is titled “Birds in Spring,” which takes its name from a line in the 1970s Judy Collins' song “Who Knows Where the Time Goes” (written by Sandy Denny), which goes like this: So come the storms of winter, and then the birds in spring again.
Arnold Goodman writes a monthly column for The Myeloma Beacon. He is 52 and lives in Tampa, Florida. Arnie was diagnosed with multiple myeloma in 2006. He has been living with relapsed/refractory disease and has been treated with multiple drug regimens. He was a practicing Ear, Nose, and Throat physician in Tampa for 20 years before the demands of his disease forced retirement last year. Arnie is married to Merle and has two children, Sam, a 19-year-old freshman in college, and Dori, a 15-year-old freshman in high school. Arnie still tries to stay physically active and loves to swim, kayak, cycle, and read.
Kevin Jones writes a monthly column for The Myeloma Beacon. He was diagnosed with multiple myeloma in January 2011 at the age of 52. Kevin lives in Michigan and works as an engineer in the aerospace industry. He enjoys biking, hockey, woodworking, walks in the woods, and family time. Kevin and his wife Karen have three grown children.
Pat writes a monthly column for The Myeloma Beacon. He was diagnosed with multiple myeloma in April of 2007 at age 51. However, Pat initially experienced what is called a complete response (or temporary remission), achieved by using a combination of extensive radiation and chemotherapy. Although his multiple myeloma has returned, it is still under control—and it hasn't slowed him down! Pat has written a book about his experience called "Living with Multiple Myeloma," and Pat maintains two blogs, Living with Multiple Myeloma and Help with Cancer . Pat's wife, Pattie, is also a cancer survivor. She remains cancer free today. The Killingsworth's have dedicated their lives to helping other cancer patients and survivors learn to cope with their disease.
Stephen Kramer writes a monthly column for The Myeloma Beacon. A native of Washington, D.C., Steve spent most of his career as a litigator and legal counselor for various New York City government agencies and commissioners. He retired in July 2010, six months after being diagnosed with multiple myeloma. Steve has lived in lower Manhattan since 1983, where he and his wife, a pediatric endocrinologist, brought up their three children. He is an avid swimmer, bicyclist, and reader.
Steve Mohr writes a monthly column for the Myeloma Beacon titled “Mohr’s Myeloma Musings.” He was diagnosed with multiple myeloma in April of 2012 at the age of 56 and began treatment with Revlimid and dexamethasone in the fall of 2013. A 36-year education veteran, he has served the last eight years as superintendent of a school district in north central Ohio. Steve and his wife of 37 years live in Bucyrus, Ohio, and have two almost grown children. Steve is a long-time coach and enjoys all sports, reading, and watching the Discovery Channel.
Sean writes a monthly column for The Myeloma Beacon titled "Sean's Burgundy Thread," based on the notion that all who are touched by multiple myeloma are connected together with an invisible 'burgundy thread.' For nearly thirty years, Sean has worked as a writer, entertainment producer, theatrical executive, and as a creative consultant in various industries. Diagnosed with Stage III Myeloma in November of 2008 at the age of 49, he chose to pursue an aggressive method of treatment. High-dose induction chemotherapy, tandem stem cell transplants, consolidation and extended maintenance chemotherapies have currently placed him in complete remission. Sean authors a blog, Myeloma Youreloma, through which he shares a positive, humorous, hopeful approach to battling the disease. A husband and father of two, some of Sean’s special areas of interest include international adoption, veteran’s issues, church, and raising dogs.
April Nelson, who lives in her hometown of Delaware, Ohio, writes a monthly column for The Myeloma Beacon. After being diagnosed with multiple myeloma in 2004 at the age of 48, April received high-dose thalidomide and tandem stem cell transplants, attaining a near complete remission. She relapsed in 2012 after five maintenance therapy-free years. A retired attorney, April is now a staff mediator for the Delaware County Juvenile Court and a community volunteer, sitting on the city’s Civil Service Commission and volunteering at the local monthly free legal clinic. April is married to Warren Hyer; she has two adult children, a daughter-in-law, two adult stepchildren, and one new granddaughter. April is a voracious reader and an avid baker.
Pat Pendleton writes a monthly column for The Myeloma Beacon. She is a longtime practitioner of buddhist meditation, creative writing, and mixed media art. Pat resides in Buffalo, New York. She is working on a memoir and preparing for a solo art show. Her gallery can be viewed online.
Alicia translates Myeloma Beacon news articles into Spanish. She was diagnosed with smoldering multiple myeloma and another blood disorder called myelodysplastic syndrome in 2009 at the age of 51. Although she has been treated twice since her diagnosis, she is convinced that her active life style and confidence in the future help to keep her disease under control. Alicia lives in Zaragoza, Spain, with her loving husband and two grown children. She works as a medical doctor in the field of clinical neurophysiology. By translating Beacon news articles into Spanish, she seeks to help spread myeloma-related news for people not skilled in reading English and to keep herself informed about the latest advances in the management of myeloma.
Sabine translates Myeloma Beacon news articles into German. She was diagnosed with multiple myeloma in 1999 at the age of 41. At the time, she had three young children (ages 3, 5, and 7) and was working as a part-time physician. She went through several therapies ending with an allogeneic transplantation in 2006. She has been in complete remission since then and decided to share her knowledge about myeloma with other myeloma patients: she translates medical articles into German and has set up a website where patients can find clinical trials for multiple myeloma in Germany. She dedicates the remainder of her time to her family and painting.
Nancy Shamanna lives in Calgary, Canada, and was diagnosed with multiple myeloma in 2009 at the age of 58. Since then, she has been successfully treated with induction chemotherapy, a stem cell transplant, and maintenance therapy. She was left with bone damage which she hopes will remain at a stable level. Nancy, who has two adult children, is currently working for her husband's busy medical practice. She has been a school and community volunteer for many years. Her current hobbies include singing in the Calgary Multicultural Choir, stitching with the Calgary Guild of Needle and Fibre Arts, and discussing interesting authors in a book club. She is also actively involved with the Southern Alberta Myeloma Patient Society (SAMPS).